Relief,

Care, support

Relief, Care, support

The Kinderspitex makes it possible for children with special needs to be cared for at home be cared for and thus be able to participate in everyday family life. It also offers also offers advice and guidance to parents. They are supported by qualified nurses with experience in pediatric care Pediatric care. Dying children are also cared for and accompanied Children's Spitex also cares for and accompanies dying children until the end of their lives. In doing so, the Kinderspitex does not provide herding and respite services. The services must be provided by be prescribed by a pediatrician. The reimbursements of the disability and/or health insurance do not cover the entire do not cover the full cost of care. The remaining financing is regulated differently in the regulated differently in the individual cantons.

As a rule, the Kinderspitex assists with the administrative And obtains the medical prescription as well as the cost approval from the communes/cantons The communes/cantons and submits the corresponding applications to the health insurance Health insurance or the IV. In addition, Kinderspitex cooperates with all involved services and regional children's hospitals.

hiki supports and relieves families with brain-injured Children. The association offers relief assignments with care services.

AsFam supports family caregivers in providing care at home and also provides expertise to parents of children with rare diseases By their side. Family caregivers are supported in this by AsFam employing them on employment contracts and pays them a salary and social security contributions for the duration of the care services provided And pays them a salary and social security contributions for the duration of the care services provided. The basic care services rendered for a family member are settled with the responsible insurance company. An hourly wage of CHF 33.50 (corresponds to the current IV assistance contribution and includes all social insurance all social security benefits).

For the care of a family member at home, parents (i.e. caring relatives) can (i.e., family caregivers) can receive financial compensation from solicare, personal care and support from qualified nursing professionals, as well as as well as substitution and relief services. The services of Solicare, as a Spitex organization, settles the accounts with the responsible insurance company Insurance company. From this, family caregivers receive an hourly wage of CHF 33.50 gross and private social insurance contributions (e.g. AHV, ALV, KTG, UVG, BVG). solicare also employs relatives without a nursing assistant diploma are employed.

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Insurance benefits, application and enforcement

The Ortho-Team is the innovation and market leader in the manufacture of Orthopedic and rehabilitation aids for children. It is represented throughout Switzerland in cantons in order to enable those affected to enjoy the highest possible quality of quality of life as high as possible despite physical disabilities.

In the electronic exchange organized by Procap Switzerland electronic exchange, free classified ads can be placed or searched for in the categories of aids, partnership/friendship, assistance, services and miscellaneous.

The disability insurance depot for medical aids (IV depot) is managed on behalf of the Federal Social Insurance Office (FSIO). There, 1) high-quality second-hand aids are lent and sold, which enable Enable people with special needs to lead a self-determined life. In the workshops of the depots, the used equipment is overhauled and controlled Quality guidelines and are prepared for their next use prepared. In addition, 2) a second-hand market is available online around the clock and brokers privately financed second-hand aids for people with physical physical limitations, free of charge and without complications. The advertisements are checked by the SAHB within one working week and are then activated.

In the In the area of mobility, the Swiss Muscle Society offers children and adolescents with muscle disorders information and support on topics such as Topics such as wheelchairs, Swiss-Trac, stair lifts/ramps, shoe inserts/orthotics, Bicycles etc.

The Foundation for the Cerebral Palsy Child offers a range of A range of aids (or financial support) in the field of mobility and care or refers to places through which these can be obtained.

On social media platforms, there are various parent groups of Children with rare diseases and special needs. Take a look at for example our KMSK Facebook groupwhere one or the other second hand items or other families have valuable tips for you ready for you. In addition, you can look out on Ebay classifieds, Ricardo and Co can be found.

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Exchange with affected families

Care.com is a digital platform for finding and coordinating care providers in Switzerland of care providers in Switzerland. This includes among others Childcare and can be used in part for finding care for affected children or alternatively for siblings.

The respite service takes over on behalf of the parents the care (not nursing) of their child and enables regular leisure time and rest for families. Caregivers are usually not placed for one-time assignments For one-time assignments, but provide regular and reliable assistance And reliable assistance. The families concerned contribute to the costs of compensating the caregivers of the caregivers. As a non-profit organization, the services can be offered at favorable conditions offered at favorable conditions. This means that those affected with low incomes Income can be granted benefits. In some cantons the Relief services run through Pro Infirmis and not through the relief service Switzerland. However, the same contents/conditions apply as with the Relief Service Switzerland.

Glanzzeit is an agency for childcare at home At home. This offers relief in childcare and if needed additionally in the household with cleaning, cooking, washing, shopping, etc. A so-called "Glanzfrau" supports families on the days and at the times they require, for example times, e.g. in the event of care bottlenecks, psychological overload or as a Overload or as a supplement to the daycare center. Weekend and night Night assignments are possible.

The association Hilfe für hirnverletzte Kinder (hiki) offers relief services over several days by trained professionals in family assistance or by deploying community service workers to families at home.

The network Neighborhood Help Switzerland offers support (in particular care and Support, relief for family caregivers), which is free of charge and provided by Volunteers who can have their hours of service credited can be credited. They can fall back on these time credits when they need support themselves Need support themselves.

The Swiss Red Cross (SRC) offers a great deal of information and relief offers for caring relatives. In addition, the SRC offers Childcare at home in emergency situations. Check out what's available in your canton. If your Red Cross cantonal association does not offer child care, the SRC SRC usually know of good alternatives.

For families with a child of preschool age who has cerebral palsy the Swiss Foundation for the Cerebral Palsy Child arranges internships for prospective HF nurses. The internships last two weeks and take place on fixed dates, usually in November/December.

The foundation KIFA Switzerland offers, in addition to a child spitex, also relief services for families of children and adolescents with special needs (e.g. immediate help, holiday week, care cost subsidy, etc.) Needs (e.g. emergency assistance, vacation week, care cost allowance, etc.).

Aladdin volunteers visit children in the hospital during the absence of their Parents are absent, in order to relieve the burden on family members and at the same time patients' undivided attention at the same time. In addition, the Aladdin apartment in offers families of hospitalized children immediate proximity to the hospital and a place of a place of peace and retreat. At the Winterthur Cantonal Hospital, a two-room apartment is Apartment is available for parents whose child has to spend a long time in hospital care in hospital care. Costs: first night CHF 30, each additional night CHF 10.

The association supports families in accompanying children and their parents during the therapy in the cancer ward of the of the Children's Hospital Zurich.

In addition, they offer accommodation to affected parents near the children's hospital, and they organize regular coffee Regular coffee meetings so that parents can exchange ideas with other affected parents with other affected parents.

In the Ronald McDonald Houses, the families of sick children can relax from the hectic daily hospital routine and exchange ideas with others affected by the disease. Families pay a symbolic contribution to costs of between 15 and 20 francs per night and room between 15 and 20 Swiss francs.

easyCab offers transports in a lying position in Switzerland and Accompanied by medical personnel, as well as wheelchair and pedestrian transports Pedestrian transports in case of confirmed medical necessity.

pro pallium offers a free ride service to low-income families free transportation service. The service is financed by donations. The Service can be booked for transports of pro pallium children and accompanying persons (parents, caregivers or pro pallium volunteers). As Transports are, for example, excursions with an affected child, bringing or picking up from a camp, vacation or hospital stay.

In the In the area of mobility, the Swiss Muscle Society offers children and adolescents with muscle diseases offers information and support on Topics such as motor vehicles, car rental, driving services, etc.

Children with significant disabilities and their Accompanying persons can make use of the services of the Red Cross Red Cross driving service.

A SRC volunteer escort brings affected families to their destination Families to their destination in a suitable vehicle. This service is subject to a charge.

The Swiss Foundation for the Cerebral Palsy Child has a fleet of driving school cars that can be rented by specially trained driving instructors specially trained driving instructors. This enables People with a physical impairment to acquire a driving license. In addition the foundation, in collaboration with Europcar, is active in the nationwide rental of cars and minibuses suitable for the disabled.

The Children's Spitex has established a cooperation with the private company "Spitex Mobile" company to provide families of children with special needs throughout Special needs throughout Switzerland with vehicles that have been adapted for wheelchair free of charge to families of children with special needs. Only for the fuel fuel is the responsibility of the parents. The Spitex Mobile Family Bus can be Can be borrowed for up to two weeks, subject to availability.

The "TIXI driving services for people with a disability" are non-profit associations for people with limited mobility, who do not use the who cannot use public transport or can use it only under difficult conditions can.

The ADELI Medical Center is an international rehabilitation center Rehabilitation center that specializes in the treatment of patients with neurological neurological deficits. The following diagnoses belong to the Core competencies: Cerebral Palsy, Stroke, Traumatic Brain Injury, and Congenital Neurological Deficits and congenital neurological deficits.

The Tannheim Aftercare Clinic offers family-oriented aftercare for affected children and adolescents and their families. Here, individual therapy plans are developed that address both psychological and physical consequences of the rare disease.