Exchange with

affected families

Exchange with affected families

The Swiss Self-Help Foundation is committed to strengthening the self-help community and lists a wide range of self-help Diseases" and lists a wide range of self-help groups.

"The Other Child" is an open chat forum for parents of children with special needs. Here, concerned parents can ask their Ask questions, but also share important tips and tricks, and thus offer each other a hand.

My.EpiCoach, the platform of epi suisse, provides contact persons for the between people with epilepsy, parents and relatives. Affected and relatives who have already gathered a wealth of experience are are available as epilepsy coaches for other people with epilepsy and their relatives and answer individual questions.

The insieme Parents' Sofa is aimed at mothers and fathers of children with with intellectual disabilities and offers the possibility parents can pass on the information and experience they have gathered information and experiences. Affected parents publish information about themselves and their Information about themselves and their child and offer to be contacted for specific questions to contact them for specific questions .

In the online cancer forum, those affected and those close to them exchange and share their experiences and knowledge. In the expert consultation hour, questions can questions can be put directly to experts.

The Marfan Foundation organizes coffee get-togethers so that Affected persons can exchange information.

REHAkids is a forum for families of children with mild developmental delay, Physical disabilities or severe or multiple disabilities. The forum offers the possibility to exchange with other affected parents and professionals and now has 50,000 members.

The Parents' Association for the Child with Heart Disease offers various Events for exchange among affected families. Be it a family brunch, a (virtual) HERZ-Café, a picnic or a youth meeting.

The Parents' Association for Children with Liver Diseases offers various Events that serve the exchange, such as a so-called encounter meeting.

The self-help day is aimed specifically at those who lead or attend a Self-help group in the field of epilepsy. In addition, epi Suisse supports numerous self-help groups for parents of children with epilepsy in Switzerland switzerland.

The KMSK Family Network regularly invites to free KMSK Family Events. This gives families the opportunity to exchange ideas with other affected families and at the same time experience a break from From everyday life.

hiki organizes a Parents' Day, a Family Day and a Grandparents' Day every year. The Parents' Day offers thematic input as well as space for exchange among the parents (for children a supporting program with 1:1 supervision is offered). The Family day offers the opportunity to spend a varied day with each other and to and to network and exchange ideas with other affected families exchange ideas. On Grandparents' Day, the commitment of grandparents will be recognized and there is room for their concerns and questions.

The association Intensiv-Kids aims to provide assistance and help for self-help for families with children and young adults with complex illnesses and special needs and offers an annual barbecue and Halloween party.

The Family day is aimed at children and young people with a muscular disorder as well as their parents, siblings and relatives and serves the mutual Get to know each other and network.

The foundation Sonnenschein supports families with a child suffering from cancer with different Offers such as day trips or a brunch.

The Visoparents foundation organizes various parent meetings with thematic E.g. autism in preschool age or vision plus.

Among other things, the VES provides support work related to the exchange of experiences and mediates between affected families. Events are held annually to network families of children with clefts.

The Parents' Forum is a network of various organizations and offers annual informational events on various topics (e.g. mourning, belonging).

Every year, the Förderverein KMSK organizes a Knowledge Forum, which is dedicated to a specific topic. For example, the topics have already been genetics, diagnostics and the desire for more children" and "psychosocial challenges" Challenges" have been discussed.

hiki organizes thematic workshops or conferences for relatives and professionals at irregular intervals for relatives and professionals on the topic of brain injuries in childhood Childhood.

The purpose of the intensiv-kids association is And self-help for families with complexly ill children and young adults with special needs Adults with special needs and offers specialized lectures as part of the "Elternoase" programs.