KMSK Knowledge Books "Rare Diseases
Rare diseases - insights into the lives of affected families
With the first edition of the KMSK Knowledge Book "Rare Diseases - Insights into the Lives of Affected Families", we have raised awareness of affected families in Switzerland whose children are affected by a rare disease.
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Rare Diseases - The Path - Genetics, Everyday Life, Family and Life Planning
The second KMSK knowledge book shows the life of the affected families. Different stages are illuminated: From the first signs of a disease, medical and genetic clarifications, everyday life to family and life planning.
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Rare diseases - therapies for children and support for families
The third KMSK Knowledge Book Rare Diseases shows what concrete support options are available in everyday life, what forms of therapy have proven successful for affected families, and where they can go for help if they lose their way.
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Rare Diseases - Psychosocial Challenges For Parents And Siblings
The fourth KMSK knowledge book "Rare Diseases - Psychosocial Challenges for Parents and Siblings" highlights the many problems that arise for affected families and shows what helps them to cope. Because, a rare disease whirls the life of affected families, destroys dreams and life plans, is a huge challenge for mothers, fathers, siblings but also for grandparents.
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Rare Diseases - Digital Knowledge Platform for Parents and Professionals
What offers of help are there? What are they entitled to and who guides them through this unknown jungle? How have other families solved this enormous task? With our 5th KMSK knowledge book "Seltene Krankheiten - Digitale Wissensplattform für Eltern und Fachpersonen" (Rare Diseases - Digital Knowledge Platform for Parents and Professionals), which was created based on our new digital KMSK knowledge platform, we provide (newly) affected families and professionals with a sustainably effective aid tool.
Other exciting book recommendations
Books - Path to Diagnosis
Books - Emotional stress and coping
Books - Exchange with affected families
Books - Relief, care and support
Books - Family and caregivers
Books - Insurance benefits, application and enforcement
- Procap: Guidebook "What is my child entitled to? (Procap, 2022) ISBN 978-3-033-09157-3
Books - Financial support options
Books - therapy and complementary offers
Books - Leisure and time out
Books - nursery, kindergarten and school
Books - Compatibility family and career
- Labor law - your rights and obligations on the job (Bräunlich Keller, 2017) ISBN 978-3-03875-033-8
- Partnership Role sharing - a model for success (Bürgisser, 2017) ISBN 978-3-0355-0725-6
Books - Adolescence and transition to adulthood
- Procap: Guidebook "What is my child entitled to? (Procap, 2022) ISBN 978-3-033-09157-3
Books - Palliative Care, Preparation, Farewell and Grief
- Parting, Death, and G rief (Mennen, 2019) ISBN 978-3-473-32956-4
- The best funerals in the world (Nilsson, 2006) ISBN 978-3-407-76114-9
- Franz-Josef and Adelgunda... Life Next to the Cemetery (Walker Miano, 2009) ISBN 978-3-85022-952-4
- Feelings are like colors - what are feelings (Aliki, 2007) ISBN 9-783407-803467
- Children and Death (Kübler-Ross, 2011) ISBN 978-3-426-87199-7
- Living Once More Before Death (Lakotta & Schels, 2004) ISBN 978-3-421-05837-9
- Oskar and the Lady in Pink (Schmitt, 2005) ISBN3-250-60057-1
- Rituals in mourning (Pauls, Samneck & Wiese, 2013) ISBN 3-8319-0110-4
- And what comes after a thousand (Bley, 2014) ISBN 3-473-33070-1
- Infinite is the pain (Fritsch & Ilse, 1995) ISBN 978-3466343362
- Why you of all people? (Pachl-Eberhart, 2014) ISBN 9 783453 703391
- Why? Why? Why?, Volume 42: Parting, Death, and Grief (Brockamp & Mennen, 2019) ISBN 978-3-473-32956-4